I’ve become familiar with anticipatory grief, the process of grieving a loss before it actually happens. I wasn’t sure if it was something I’d write about, but I’ve always found writing helpful for making sense of the world. When someone is really ill, time does strange things to you. In some moments it feels like…
Category: Thoughts
But who are we Fighting, Really?
I’ve been reading and thinking a lot lately about the systems that enable discrimination against certain groups of people. Of course I experience this discrimination as a disabled person, but disabled people are hardly the only group to find themselves disadvantaged and on the receiving end of unequal treatment. I started my life as an…
Blindness and the Barriers to the Ancient World
I’ve been thinking a lot recently about information deprivation. These aren’t new thoughts. As a blind person, I’m constantly denied access to information that other people take for granted. That denial isn’t malicious, it’s simply a result of living in a world that isn’t designed for people like me. There are lots of very important…
Remember your Participants are Human
The ethics form for my master’s research project wasn’t approved. I have to start by saying this, because it’s what has prompted the following thoughts. I actually found the reason extremely understandable. I was going to interview participants about potentially distressing experiences, and so I was asked to consider whether there was another way I…
I Don’t Want a World Without Disabled People
Last night I was reading an article about a start-up that claims it can help prospective parents by allowing them to choose healthy embryos. I’ve written multiple times about my fears around tech companies that want to create genetically perfect matches, and my relief that my parents were never concerned with finding a cure for…
Getting Lost in Language
I learnt something about power in advocacy spaces when I studied abroad in Colombia. Specifically about communication involving people who speak different languages. It’s something I’ve wanted to write about for a while, but I’ve never been quite sure if I’m the right person to share it. I’m hoping that by writing about this, others…
Who has the Right to Cause Hurt?
This semester I’m taking a class in European human rights law. It’s one of the most complex and deeply interesting classes I’ve ever taken, not least because it forces me to ask myself difficult questions that I may not want to answer. I think that’s so important as a student, that I’m challenged to push…
